How do I get an autism diagnosis in the UK?

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If you’re reading this, there’s a good chance you’ve had that feeling.

You know the one.

A quiet (or not-so-quiet) sense that your child experiences the world a bit differently — and that you’re endlessly explaining them to schools, family members, or even well-meaning strangers in the supermarket queue.

You might be wondering whether autism could be part of your child’s story — and if so, how on earth you’re supposed to get a diagnosis in the UK.

Take a breath. You’re not behind. You’re not imagining things. And you’re certainly not alone.

Let’s walk through the process together — calmly, clearly, and without unnecessary jargon.

Why seek an autism diagnosis?

An autism diagnosis isn’t about putting a label on your child.

It’s about understanding.

For many families, a diagnosis helps to:

• Make sense of differences in communication, behaviour, or sensory needs

• Unlock the right support at school and beyond

• Reduce blame, guilt, or endless second-guessing

• Help children understand themselves more kindly as they grow

Autism is a neurodevelopmental difference — not something caused by parenting, screens, or “not enough discipline” (despite what your aunt on Facebook may suggest).

What are the signs of autism?

Autism looks different in every child. Some signs show up early; others become clearer once school demands increase.

Common features may include differences in:

• Social communication (for example, taking language very literally or finding conversations tiring)

• Play and friendships

• Sensory processing (noise, clothing, food, light)

• Routines and predictability

• Emotional regulation and anxiety

Importantly, autistic children can be chatty, affectionate, academically able, and deeply empathetic. Many girls, in particular, mask their difficulties well — which is why autism is often missed or diagnosed later.

If you’d like an overview of early signs, the NHS provides a helpful starting point.

How do I get an autism diagnosis on the NHS?

Step 1: Speak to your GP (or health visitor if you have a younger child)

The NHS pathway usually starts with your GP. Share your concerns clearly and give real-life examples of what you’re seeing at home and school.

Your GP can then refer your child to a local autism assessment service (often via Community Paediatrics or CAMHS).

Step 2: Waiting… and waiting

This is the hard bit.

NHS waiting times for autism assessments vary widely by area and can range from many months to several years. This delay is frustrating, especially when your child needs support now.

While waiting, it’s still worth requesting school support, reasonable adjustments, and SEN input — a diagnosis is helpful, but it isn’t required for help to begin.

NICE guidance confirms that support should be needs-led, not diagnosis-dependent.

Can I choose a private autism assessment?

Yes — many families explore private assessments, either because of long NHS waits or because they want a clearer understanding sooner.

A high-quality private autism assessment should include:

• A detailed developmental history with parents or carers

• Structured autism-specific assessments

• Input from school or nursery where possible

• A clear, written report with practical recommendations

At NeuroDiverseKids, assessments are carried out online by experienced clinicians who understand how autism presents across ages — including in children who may also have ADHD, anxiety, or learning differences.

Crucially, the goal isn’t just diagnosis — it’s guidance.

Will a private diagnosis be recognised?

This is a common (and very reasonable) question.

A well-conducted private autism diagnosis that follows NICE-aligned standards should be recognised by schools and local authorities. Schools, in particular, are legally required to support a child’s needs, regardless of where a diagnosis was made.

You may find it helpful to share guidance from respected charities such as the National Autistic Society.

What happens after a diagnosis?

Often, families describe a mixture of relief, grief, validation, and “oh — that explains a lot”.

After diagnosis, support might include:

• School strategies and reasonable adjustments

• Parent guidance around emotional regulation and behaviour

• Support for anxiety, sleep, or sensory needs

• Helping your child understand their neurodivergence positively

A diagnosis doesn’t change who your child is — it simply helps the adults around them do a better job of supporting them.

A final word for parents

If you’re wondering whether to pursue an autism assessment, trust your instincts.

You don’t need to be 100% sure.

You don’t need to have everything figured out.

You just need curiosity, care, and the courage to ask questions.

And if the system feels slow or confusing? That’s not a failure on your part. It’s a sign you’re navigating something complex — and doing your best.

You’re already advocating. That matters more than you realise.

​Book an assessment or discuss treatment.